About the Vanishing
White Matter Consortium

The Vanishing White Matter consortium consists of 9 (pediatric) neurologists from 8 academic medical centers worldwide, all involved in leukodystrophy patient care and research. The consortium started in 2019 to work on the overarching mission: enabling and accelerating therapeutics for Vanishing White Matter, accessible and affordable for all patients. To help us achieve our mission we interact with various partners, including patient / family / caregiver foundations, (medical) specialists, academic institutes, and biotech and pharma companies.

VWM patient registry

The Amsterdam Leukodystrophy Center has developed an online global registry for patients with Vanishing White Matter (VWM). The purpose of the registry is to gain as much insight as possible into the course of the disease, both in terms of clinical features and MRI. This database will play an important role in developing treatment strategies and making decisions about therapeutic trials. Information is needed about as many patients as possible.

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About the Vanishing White Matter Consortium

About the Vanishing
White Matter Consortium