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About us
For VWM patients
Clinical Trials
Updates
News
Publications
Links
Partners
Contact
Register
News & Updates
Please find here an overview of our latest news, updates, or events.
2 juni 2021
Guanabenz VWM clinical trial patient enrollment has started
We are pleased to announce that the first three VWM patients have been enrolled in the study and more patients will follow soon.
1 juni 2021
First VWM consortium presentation at ULF family conference – June 25th 2021
This conference focuses on providing scientific information to keep families informed of progress in the leukodystrophy field. Please join our presentation live.
1 juni 2021
VWM mouse models through the CRO Sylics
Amsterdam UMC developed two mouse models for VWM. These mice harbor VWM genetic mutations, which result in a phenotype similar to human VWM patients.